Today we’re up to our Saturday House Cleaning. An activity that has brought much groaning and gnashing of teeth to my house. Clean? On a Saturday?
As if it’s a new concept.
I’ve heard everything from “It’s kind of funny we used to really like Saturdays when we could sleep in, but now we have to clean” to “I wish tomorrow wasn’t Saturday“.
We are experiencing some growing pains as we adjust to this new idea. I’ve mentioned before, my children live in mortal fear that they will do more work than a sibling. And that very thought strikes terror in their hearts.
Our Saturday cleaning isn’t pretty, but it’s getting done. 
Apollo’s has a rough few days. Crying, crying and crying. He is down to two tube feedings a day. The problem is, this leaves him hungry (he obviously needs to be hungry to eat) and he asks for food all day long, but won’t eat any of it. Yes, we’ve tried everything. Thanks to my last post about his eating, I have a few great leads on some feeding therapy (one less than ten miles from my house!)
I took these photos a few days ago, as Apollo played with his toys. He had them talking to each other, and fighting, and going up to space. His talking was so animated, that he got out-of-breath. Just from talking. He sounded like I would sound if I were talking while going up several flights of stairs. But he was just sitting and talking while he played
He’s breathing has been a bit rougher lately. Maybe he’s fighting a cold…
The really difficult thing is, he gets really, really out of breath still if he cries for too long. It makes the option of putting him to bed and making him “cry-it-out” as ridiculous as it’s always been. It was nice to hear that every other parent on our double aortic arch Facebook group has this same problem. How do you leave a baby/toddler to cry when it makes their oxygen level drop? You don’t.
Well, I’m off to clean the fridge and pantry so we can do another big food prep for the week. I should be back to posting meal plans tomorrow.
Happy Saturday! Unless of course, your mom is making you clean the house, in which case it will probably be a completely miserable Saturday.





































