Krispie Kreme

posted in: Apollo, Large Family, Special Needs | 21

After our rendezvous at California Pizza Kitchen last week, I had the brilliant idea to take the kids to Krispie Kreme doughnuts where they could watch the doughnuts being fried and glazed on their nifty assembly line. Most of the kids had never been there before. Okay, truth be told, most had never even heard Krispie Kreme doughnuts. But I digress.

Unfortunately, when we arrived they weren’t actually making doughnuts, so it was a bit of a flop. Okay, maybe not since Chuck bought two dozen glazed doughnuts. But *I* wanted the kids to see the doughnuts being made.

We let Apollo pick his doughnut out of the display (such is life with a tubie).012713_9479 blog

He studied it for a moment…012713_9480 blog

…then dug in.

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And after several valiant attempts, this is how much he ate.

For real.

Throughout the day he kept attempting it until he finally had licked most of the frosting off.

I don’t really understand why Apollo eats so little, other than the vague “psychological issues” we were told to expect. What does that really mean? I don’t know. Now that the compression on his esophagus is gone, he eats carrot sticks, celery, red peppers and apple slices with abandon. All foods that were too dangerous for him to eat before. He also eats: chips, M&M’s, egg whites, popsicles, Chicken McNuggets and fries, olives (green and black)…so why not a doughnut? Or a sandwich? Or a hundred other foods? I have no idea. He now gets 500 mls of formula from his tube a day, down from 760 mls before the surgery in Houston. I just wish I had some kind of a  roadmap for “teaching” him to eat. I think he’d really benefit from “group therapy” with other (non-sibling) kids who all meet once a week or so too eat together. Unfortunately, there is nothing like that around here.

012713_9486 blog 012713_9487 blog

The other kids all dug in with gusto reserved only for rare treats like sugar-filled doughnuts.012713_9488 blog

Jubilee, age 10012713_9490 blog

Hezekiah, age 8012713_9489 blogTucker, age 7

A fun finish to a fabulous food-filled day.

 

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21 Responses

  1. From the outside looking in, two things dawned on me when I was reading the list of all of the foods that Apollo WILL eat: 1) they are all basically finger foods – small, manageable pieces that he can either pop into his mouth whole or eat in just a couple of bites. So I wonder what he would do if a sandwich or donut was cut into bite-sized pieces, e.g. no bigger than a chicken nugget? Or if he was given a doughnut hole instead of a regular-sized doughnut?

    The other thing that really stood out is that all of the foods listed are single-ingredient. Again, makes me wonder if he would eat a plain doughnut, or a doughnut hole? When my boys were toddlers I used to keep “grazing” food in the refrigerator for them, especially as they were weaning. I’d go to the deli and buy turkey breast sliced about 1/2 an inch thick, and sometimes ham or turkey ham. Then I’d cube it and put it in a container. Same with cheese (of course now you can buy already cubed cheese). Apollo might even like cheese or meat-filled tortellini or mini ravioli (sans sauce).

    Here are some other favorites when my guys were little and were bored with sandwiches: spread cream cheese onto ham or turkey sandwich slices and peanut butter onto bologna, roll them up and then slice those into little finger-sized roll-ups. (Disclaimer – we seldom use processed lunch meats other than turkey or ham, but on occasion using the bologna and PB got them eating protein and some needed fat when they wouldn’t eat sandwiches). Apollo might not like them with multiple ingredients, but you never know!

    If he does, another little thing I did for fun when they were small was to make open-faced sandwiches on those small, square ‘cocktail’ breads and use a mini gingerbread man or flower cookie cutter to make them shaped sandwiches. Like above, I’d spread PB and then top with bologna (otherwise it won’t stick!) and cream cheese topped with American or cheddar cheese.

    One more random thought – does he try your soups and stews (like the gumbo you recently made)? If not, might be that single-ingredient-easy-to-manipulate-thing. Would he eat the ingredients you put in the soup if they were on a little divided plate?

    Enough from me . . . I must return to my messy kitchen! Blessings 🙂

    • bakersdozenandapolloxiv

      Ellen- thanks for the suggestions, I will give the single ingredients a try. Apollo is still 100% dairy free and he won’t eat soup.

      • I didn’t express my soup idea well – what I was picturing in my head was something like a plate of fruit where the grapes, melon and strawberries are on the same plate but not mixed together or touching each other – only it’s the different soup ingredients, e.g. beef, carrots, okra. Back to the single ingredient idea, sort of!

  2. I hear ya on the wondering why they eat some things and not others. My little Kestrel has been diagnosed with failure to thrive and we’re trying to get more calories into her. She won’t eat most kind of cheese—but she will eat pepper jack cheese. She loves guacamole and anything involving olives. But given a choice, she would just live on grapes. She has also rejected all varieties of fish–except spicy tuna sushi. Which we only gave her as a joke and she scarfed it down. And she also prefers eggs to donuts.

    • bakersdozenandapolloxiv

      Samantha- thanks for your input. Isn’t it frustrating? Makes me very thankful for his g-tube.

  3. Hi Renee, I’ve been following your blog for a long time but have never commented. I enjoy your writing a great deal and feel immense affection for you and your family.

    My 5 year old son just started group feeding therapy at Bothell Pediatric and Hand Therapy. I know that Bothell is a long haul from Bellingham, but it might be worth it to call them for recommendations in your area. Also, there are great resources for their approach online. It’s called the SOS (Sequential Oral Sensory) Approach and we are implementing a lot of it at home…..and it’s helping!! I’m happy to send you more info on it, but you could probably find a book that would be able to help you. If you have any questions, let me know.

    Prayers and best wishes.

    • bakersdozenandapolloxiv

      MamaP- thank. I just got a lead from a Facebook friend about local classes. If that doesn’t work I will call the place you recommended.

  4. Our son was also tube fed. It took him a long time to eat normally once we stopped tube feeding, but it did happen. He also hates processed foods of any kind. I think the flavor from the high calorie formula, even if it is not taken by mouth, comes up for tube fed kids, and they associate any unnatural taste with a not-nice full feeling. My son would still live off of raw red peppers, and hates almost all sugary sweets. He prefers dark chocolate or fruit for “treats”.

    All of this trauma is still so recent with Apollo. In a year, two years, and three years from now, you will be astonished in the changes in him. Thank Gd he will even lick the frosting! To me it is a miracle!

  5. Connections (just down the road from you!) is running a weekly breakfast group for toddlers and preschoolers with psychological issues with eating. Email me and I will give you the number of my friend who works there and she can give you more details. She also gave me another name of someone who has a group in the north county. Just email me.

  6. My thought when reading the list was that they are bite sized finger foods and perhaps it’s the sensation of having to opening his mouth wide to take a big bite out of something that he has an aversion to? That closing feeling at the back of your throat when you open wide for a big bite?

    • bakersdozenandapolloxiv

      Hmmm. Could be. We try to vary giving him small bites and then what everyone else is eating. Who knows…

  7. Hey Renee, I am one of your long-time lurkers; I read all the time but I rarely comment. (I know, bad). I’ve read your blog since Tucker was 1! It’s been fun to watch the crew grow up.

    Anyhow, my friend has a tube fed child because of a syndrome, which they think may be Angelman’s but all the genetic testing comes back negative. But she also eats, but not enough to keep her alive. However, the occupational therapist thinks this is because she has sensory integration disorder. If you give her a plate of shaving cream to play with in OT, she will pop some in her mouth and not notice the taste very much, because her senses don’t tell her it tastes badly. So, she has little interest in food because she doesn’t associate it with tasting good or filling her tummy, because her sensory processing is messed up.

    I have no idea if this could be Apollo’s situation or not, but with his sensitivities (not sleeping, difficulty eating, etc), it is worth at least asking about, I should think. I realize he doesn’t have a developmental delay in the same way, but plenty of neurotypical children also have SID. I realize his is largely a physical problem, but perhaps it’s a post-traumatic sort of onset? Not sure. Anyway, just a thought.

    Suzanne

  8. You need to find out when your local Krispy Kreme has its hot light on! Then you’ll get to see everything in action, AND they’ll give everybody a free, fresh warm one off the conveyer belt! I love Krispy Kreme so much, that before it came to Canada, I would drive down from Vancouver to Burlington with friends now and then for a fun adventure, and we would call ahead and find out when the hot light would be on and try to time it for then. One time we went really late at night, and they opened up and gave us a tour, and gave us two dozen free donuts because we told them we were from Canada and had driven down just to get us some Krispy Kreme!

  9. Renee,
    Remind me to give you copies of our “Food Chaining” handouts. You basically start with something the child will eat, then make tiny changes. Like if he eats carrots, give him a carrot in a different shape. If/When that is accepted give him another food in the same shape, or a cooked carrot. Only make one change at a time. We now have Owen eating almost anything on a tortilla that we can call a taco. He still only eats one flavor of one brand of yogurt though. And he wouldn’t eat the pancakes at the hospital because they use a mix and didn’t have real maple syrup. We’re getting there though. I’d also be interested in any information you find about local food play groups, we never managed to find one.

  10. Hi Renee,

    I would wonder if it is a texture issue, or maybe a gluten issue. Do you think he would eat gluten free doughnuts?

    You asked a while back what we wanted from the blog, and sometimes I wonder how you keep going… I mean not b/c you have to much on your plate, but what do you do when you get bored with house work, home school ect…?

    Do you ever wake up thinkibg I refuse to wash one mire dish??? 🙂

    • bakersdozenandapolloxiv

      We actually had him tested for celiac early on, as well as have gone gluten free. It didn’t make a difference.

    • bakersdozenandapolloxiv

      I honestly don’t get bored…frustrated yes. It’s not really something I’ve thought about. I have a family and children to take care of, so that’s what I do.

  11. Is there a way you could start a therapy group? Maybe talk to Apollo’s pedi about suggestions. Set up a day once a week in which you and a few mom’s met together to get your kids to eat. I know other health issues can make it so kids don’t want to eat. Maybe you could be a trailblazer in this way not only for your kiddo but also for someone else’s.

    • bakersdozenandapolloxiv

      The great news is, after that post I have been contacted by several local moms with leads on feeding-therapy! I am so excited.

  12. Maybe Apollo isn’t a fan of certain foods and will grow out of it. I made chocolate oreo cake from scratch on Friday with my 2.5 year old grandson. He loved the process of making it, but eating it was another story. He took one bite and said “I want strawberries.” My son attacked the cake and the baby ate strawberries. I don’t give my grandson carrots and certain other foods because I am afraid of him choking, but if Apollo can eat them without a problem then it’s probably just a matter of tastes.

  13. I have an unrelated, rather silly, question. How do you keep Hezekiah’s padewan braid clean? Being a Star Wars fan myself I thought that was cool, but didn’t like the idea of unbraiding it to wash someone’s hair each time it needed it.

Please share your thoughts!