Kalina’s Yearly Hearing Test {Unilateral Hearing Loss}

posted in: Special Needs | 2

Last week was Kalina’s yearly hearing test. Kalina was diagnosed with unilateral hearing loss in 2013...when she was twelve years old.

I will forever regret that she wasn’t diagnosed sooner…but I did due diligence as her mother. When Kalina was just a toddler I took her to the doctor and explained (rather awkwardly) that I was concerned about her hearing because when she spoke she sounded like a deaf person.

Now, we knew she could hear, since she responded when we called her name, and she talked (a lot) but she sounded exactly like a deaf person.  The doctor looked in her ears, talked to her, and said, “I think your expectations of what a toddler should sound like are just too high. Let’s give it some time and if her speech doesn’t improve naturally, we can have her hearing tested”. 

And that was that. Her speech improved and the worries about her hearing all but vanished…

Kalina’s appointment was at 8:15 in the morning at Seattle Children’s Hospital which means we got to leave a little before six am…and still got stuck in so much traffic we barely made it. Apollo decided to come along for the ride and was eager to play in the sibling playroom (an area he has rarely been able to access since he’s usually the patient). Kalina's yearly hearing test at Seattle Children's Hospital {Unilateral Hearing Loss}

After arriving, just in the nick of time, I left Kalina in the waiting room and quickly when down two floors to check Apollo in.

Except.

The playroom opens at 8:30…not 8 am like I thought.

*sigh*Kalina's yearly hearing test at Seattle Children's Hospital {Unilateral Hearing Loss}

So instead, Apollo got to come a long and be very quiet while Kalina had her hearing checked.

It always fascinates me to watch Kalina’s hearing test.  Sitting on the other side of the soundproof room, I can hear the same tones they are testing Kalina for. For part of the test, the technician says a word (with her mouth covered so Kalina can’t lip read) and has Kalina repeat it. This is always a good reminder to me to be patient… there is so much she doesn’t hear…and so much she hears wrong as her brain tries to fill in the missing sounds.

Her left ear, as always, functions perfectly. She has very little hearing at all in her right ear and none at all in the vocal range. In other words, she can’t hear the human voice, at all, in her right ear. Kalina's yearly hearing test at Seattle Children's Hospital {Unilateral Hearing Loss}

Part of the earpiece for Kalina was damaged in Peru, so Kalina needed a new mold of her ear taken. Unfortunately, insurance doesn’t cover the cost of hearing aids (which are several thousand dollars) and the hearing specialist said it was time to start thinking about a newer hearing aid. Time to start saving our pennies…Kalina's yearly hearing test at Seattle Children's Hospital {Unilateral Hearing Loss}

The playroom may have been closed but the cafeteria (and Starbucks) were open. Afte looking at all the selections Apollo chose a donut. Or two.Kalina's yearly hearing test at Seattle Children's Hospital {Unilateral Hearing Loss}

Thankfully, Apollo was kind enough to share his food with Waddles the Penguin. Kalina's yearly hearing test at Seattle Children's Hospital {Unilateral Hearing Loss}

Kalina has been writing more about her hearing loss. To learn more from her perspective check out these posts on her blog:

Why I Don’t Talke on the Phone

Why I Always Use Subtitles

Top Ten Pros and Cons of Being Deaf

Also, be sure and check out her cute video here.

 

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2 Responses

  1. Jessica Carter

    It is SO frustrating to do your due diligence and be dismissed as being too worried only to find there’s something actually wrong.
    I really can’t believe insurance doesn’t cover hearing aids, especially for children.

  2. Jessica Willey

    I’m not sure if this will help but Children with Special Health Care Needs might be able to cover the cost of Kalina’s new hearing aid. They covered mine from the time I was diagnosed with a bilateral hearing loss at 6 or 7 years old until I aged out at 21.

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