What Grace Looks Like {Special Needs Parenting}

posted in: Special Needs | 5

Summer has arrived. My favorite season of the year!

I love long, lazy days in the sun. Swimming, hiking, reading. Eating ice cream.

Summers, unfortunately, have gotten hard over the last few years. As the behavior of some of my kids with special needs escalates the phrase long summer days takes on a whole new meaning. This summer I am giving myself grace. This is what grace looks like.

This summer, I am giving myself grace. Grace to do whatever it takes for us all to survive summer unscathed. I am a bit of a homebody. I love to work on projects at home, read, soak up the sun in my own yard. But some of my kids’ personalities mean being cooped up together day after day just isn’t an option.

This summer I am giving myself grace. This is what grace looks like.

So I am taking one day at a time. I am trying to not have more than two days or so without some break in our routine. Monday it was Apollo’s birthday party and Tuesday was Avi’s.

Yesterday (Wednesday) was a trip to Taco Bell and the library.

This summer I am giving myself grace. This is what grace looks like.

We loaded up on new library books. All of my children can read independently now but we all still enjoy a good read aloud. Books can often soothe restless spirits and bodies in our house.

This summer, grace looks like frequent trips to the library.

This summer I am giving myself grace. This is what grace looks like.

As you can see, Apollo found exactly the right book at the library yesterday…

This summer I am giving myself grace. This is what grace looks like.

This summer I am giving myself grace. This is what grace looks like.

If you have ever admired me for my ability to do it all, admired my Super Mom abilities…you can stop right now. You should have seen me at Costco earlier this week. I loaded my cart with prepared food instead of ingredients. Yes, I still bought produce and meat…but I bought a lot of other stuff too.

Right now, this summer, grace looks like doing whatever it takes to relieve a bit of stress and help everyone survive (and hopefully even enjoy) summer vacation.

In a nutshell, this week grace looked like a cart full of crackers, cookies, frozen pizza (try the Kirkland brand, it’s good!), and chicken patties.

Grace looked like a trip to Taco Bell.

This summer I am giving myself grace. This is what grace looks like.

Yes, I care about what my kids eat. Yes, I think healthy, homemade food is the best way to go.

But you know what? Right now I can’t. Not every day, anyway. Sometimes there is just too much on my plate. Sometimes I am dealing with situations I could never have dreamed about…situations that no parenting book ever prepared me for.

This summer I am giving myself grace. This is what grace looks like.

So I’m giving myself the grace to do the best I can and not feel guilty about the Otter Pops I bought (they are made with real fruit juice). I don’t want my kids to grow up in a home with a mom who was always stressed and never seemed to enjoy her motherhood. I love motherhood. There is no question about that.

This summer I am giving myself grace. This is what grace looks like.

But my situation, my children, their needs, are anything but ordinary.

So this summer grace looks like:

A trip to Taco Bell.

Frozen pizza and oreo cookies.

More trips to the library. More movies. More screens.

And you know what?

It’s okay.

It’s more than okay.

It’s reality.

My grace is sufficient for you, for my power is made perfect in weakness.

2 Corthinians 12:9

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5 Responses

  1. Yes!! This kind of gentleness with yourself is soooo important. I get caught up in that cycle all the time. Your superhuman status is still intact however.

  2. Yep. I am right there with you. You just gotta do what you have to survive! My kids spend obscene amounts of time on the screen and the trips to the dollar store for candy are many. But when you are dealing with crisis situations on a daily (often HOURLY basis) something has got to give! Good for you!!!!

  3. Vivian Powell

    Good for you, build some memories.

  4. Thank you so much for this post! It is just what I needed to hear. I too am dealing with situations that I am completely unprepared for. I want my kids and myself to have happy feeling about the LONG summer days. Grace is just what I need!

  5. Amen, amen, and amen 😀

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