The Cherry on Top

posted in: Apollo, Special Needs | 21

Thank you for your responses to yesterday’s post…it is fun to see what other enjoy most about the teen years. Tomorrow will be our Parent Fail Friday. If you have a blog, post about it and link in the comments. Otherwise, feel free to share your “fails” in the comments section.

double aortic arch, heart defect, g-tube, tube fed toddler, tubie, I recently read (I don’t remember where) a mother refer to her last, bonus baby as “the cherry on top”. I love this description.

That’s Apollo. Our well-planned, beautiful cherry on top. He is adorable, delightful, bright and funny. It’s hard to imagine life without him (my youngest would be 7!)

Our little cherry on top has not been feeling well lately. He’s complaining of being tired. That’s right, my three-year old complains of being tired. Yesterday, he spent the morning lying on the couch saying he was tired and wanting me to lie there with him. Twice this past week we have gone to playgrounds and he has been too tired to play. When we went to the lake recently, he curled up on my lap and went to sleep after a very short “swim” with Tilly.

He goes in for his three-year “well child” visit next week and I will discuss it with his doctor. I doubt he will have any answers. The doctors can’t predict how he will grow and develop. Whether his airway will grow with him, or whether it will remain small, making breathing more difficult the older he gets.

This morning he awoke and rolled over, placing his little hands on Chuck’s face.

“Daddy?”

“Yes, Apollo?” Chuck answered.

“When I grow up I’m going to be an astronaut!”

Of course, he won’t ever be an astronaut. Not unless technology comes far enough along to give him a brand-new airway. At this point, it is unlikely he could even join the military.

We have introduced him to the idea of playing the violin “when you get bigger”.  A friend recently gave me a teeny-tiny violin for him. Apollo loves to watch videos of toddlers playing the violin. We plan to start lessons when he is three and a half or four. Sports may or may not be in his future. We hope by introducing the violin he will have something that is “his”. Something that doesn’t require a strong airway and physical exertion.

Whatever his future holds, God is in control. He has a plan and I’ve lived long enough to know that I don’t always want to know the plan ahead of time. And I’m okay with that.

 

 

Facebook Comments

21 Responses

  1. I am always happy to vote for you, I don’t always remember though. I don’t know about other people but if you posted a link and reminder on facebook every morning I will definitely vote!! 🙂

  2. My fave 3 year old boy. Always praying for you all.

  3. Reading about Apollo’s desire to be an astronaut reminds me of my son. He is 7, and talks frequently about being a policeman. Like Apollo’s astronaut dream, my son will never be a policeman, and it breaks my heart to hear him talk of it. Do you just go along with it for now? That’s been my strategy. I’m dreading the day I have to explain it to him.

    • Samantha

      I wonder that you will ever need to explain that to him? I remember being about six and announcing I wanted to be a pediatrician. My parents took that to heart….but at age sixteen we had a huge fight when I said I wanted to be a writer….because I had “always said I wanted to be a doctor”.

      It feels so silly now—because a child is trying on so many hats—why did they believe that so solidly?

      Which is all just to say that I think encouraging your child to explore their dreams is exciting and shouldn’t be discouraged this young. There are plenty of years for disillusionment. I wonder what it is about being a Policeman that he loves so much? That might help shed some light on other things he could be too—if he wants to protect people there are lots of ways he can do that :).

      I wanted to be a pediatrician because I liked band-aids and taking care of children.

      • bakersdozenandapolloxiv

        I don’t know what the future holds. No, we don’t discourage him from being an astronaut (or anything else). Strange that your parents would react that way. I can thing of TEN things off the top of my head that I said I wanted to be…

      • Samantha

        Well, my parents also didn’t tell me I was adopted until my birth mother contacted me a couple months ago—and I’m 34. I think they have always parented more from what they desire the world to be rather than reality. In many ways I find that very sad, because despite their disappointment in me—I am very happy.

        • bakersdozenandapolloxiv

          You’re happy and that certainly means more than their disappointment.

    • bakersdozenandapolloxiv

      Inga- well he just turned three, so no, we haven’t told him that is a very unlikely job. He’s suffered enough in his three years. It breaks *my* heart as a mama…but we all have limitations, don’t we? I’m barely 5’2″, lets be honest, I could never be in the NBA.

  4. C Smith

    My eight year old tells me all the time that she is going to be a famous basketball player. She’s been by far the smallest kid on her team for three years now so I seriously doubt it, but I just keep encouraging her. We even had a basketball themed birthday party this year, she’s going to learn all too soon that we all have limitations.
    We say all the time that our youngest (20 months) is the perfect “baby of the family”. He’s a laid back, cuddly little guy who loves all “his peoples”. He’s quite a clown, loves attention and doesn’t seem to be TOO spoiled by it. He really is just the cherry on top!

  5. When our oldest was three, she announced she was going to be a doctor, a farmer and a fairy god mother. She didn’t become a doctor or farmer, but her nieces and nephews who she has bought bikes for, taken to Starbucks, taken on trips to Long Beach Ca., Disneyland, Houston and maybe next year trips to Peru, where she now lives, would say she’s a Fairy God Mother.

    • bakersdozenandapolloxiv

      Awesome! Who doesn’t want to be a fairy godmother???

  6. I think it’s great that he wants to be an astronaut. He’s three. He can always become an astronomer and study the stars if he can’t fly among them.
    And for the record, when I was a little girl around Apollo’s age I wanted to be John Elway and Mickey Mouse (at the same time).

    • bakersdozenandapolloxiv

      Exactly, we all have limits. No matter how hard you try, you are not going to be John Elway. Or Mickey Mouse. Or both 🙂

      • But one day, my letter from Hogwarts is going to come. That I know for sure 🙂

  7. Gillian

    The violin is a great instrument. That’s the first instrument I learnt. I’ve also really enjoyed playing percussion, which is another great option (it doesn’t have to be the drums…melodic percussion is wonderful!)

  8. Violin would be great for him–my daughter is practicing right now–great for the soul, great for coordination, great for school–and fun!

  9. I sometimes call my youngest our “plot twist”. She was not planned by us, arriving only six weeks after my next youngest child’s fourth surgery. Her sunny self has been a big comfort and watching her learn how to roll and sit up with her two year old sister as training buddy is a balm to my heart. She is the ying to her big sister’s yang. She babbles constantly where her two year old sister hardly makes a sound. When she smiles her eyes open wider, her big sister’s whole face squinches up with joy. She is very much our cherry on top. My child with special needs doesn’t have any words yet, but her older brothers and sisters dream on her behalf (Mum, when Kaylee gets older we can…..) and there is never any certainty to those dreams for her – even something as simple as eating chocolate cake has a question mark over it with my super-tubie! Every time it is bitter sweet. I don’t deny any of those dreams and I try not to underestimate my girl, but the reality is she is unlikely to ever be able to do some of the things they dream for her.

    • bakersdozenandapolloxiv

      Aw, thanks for sharing about your daughter. A “plot twist” is adorable!

Please share your thoughts!