PEG to Mic-Key

posted in: Apollo, Special Needs | 14
Packing for our trip.

Well, I must say, this procedure was a  breeze compared to what I was expecting. Apollo is always full of surprises when it comes to anything medical. His birth, his heart defect that went undiagnosed for 18 months, his bronchoscopies that led to fever and vomiting, his three weeks of pain after his initial PEG placement.

Chuck and I debated about whether to leave the night before, or to leave our house at 4:30 am…in the end we decided that all three of us would sleep better here at home. The best part is, I was able to give Apollo a full feeding the night before and pump his tummy full of apple juice at 4 am. So different from back in May, when he only ate about 4 animal crackers before having to fast all night long.

Apollo was a great traveler. He was a bit disoriented when we loaded him into the Jeep. He kept asking where we were going. He fell back a sleep for a bit, then woke up just as we entered Seattle. He’s so familiar with the hospital, and he wasn’t starving since it was so early in the morning, that he was fine up until we got him into the pre-op room.

{When we put the gown on him, he started crying and said, “Mama, I not want to  wear this dress.” Poor kid.}

By then he knew he was in for more that just a doctor’s visit. The anesthesiologist we had was awesome. He was completely up to date on all of Apollo’s issues. The first thing he said was, “I was reading about the narrowing in Apollo’s trachea. I do have to put in a breathing tube up above the level of narrowing,  but I’ll use a tube that’s no bigger that the narrowing of his trachea.” Makes perfect sense, right? If he is (unfortunately) used to breathing through that narrow of an airway, there’s no reason to force a bigger tube in the upper part.

He also said that there was a not in Apollo’s chart that says he is “an unhappy child”. “I know exactly what it means when a chart says ‘unhappy child’ it means I need to offer them some Versed before the procedure. When a kid’s had numerous procedures it often gets harder to put them out. Are you okay with him having some?”

Apollo was hilarious on the Versed…he kept tilting his head to the side and watching who knows what float by. Apollo, who is very leery of any medical personnel, tried snuggle with his GI doctor when he came in. His GI doc said, “At least he’s a happy drunk!”

The procedure went smoothly and we now have new photos of Apollo’s stomach and esophagus. Interestingly, these photos not only showed the narrowing, but also showed that his esophagus is almost spiraled in the the compressed area. It twists a bit. No wonder he can’t force much food past it! The GI doctor also said he could see his esophagus pulsate from the artery compressing it. That must feel horrible when he’s trying to eat.

While the procedure went smoothly, waking up didn’t. Chuck and I were two floors down in another wing of hospital waiting for Apollo to be brought to his room. I laid out his rocket quilt and his Tubie Friend and we waited. Until a nurse came rushing in saying, “We need mom down in recovery now”. 

Up I went, only to find Apollo being held in his crib by three people…that’s how many it was  taking to get him not to dive out. Poor baby. I then held him while he screamed and cried until someone was available to escort us to his room. He’s earning quit a reputation over there…

Once he was wide awake and had a  tube feeding, he was  tearing the place apart. He had no fever and was having zero breathing issues, so the decision was made to send us home!

He has a bit of a sore throat and some stridor today, but that’s it. No pain at the site! All in all, the easiest procedure he’s had done.

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14 Responses

  1. Kathy Barber

    I am so glad his procedure went well. It’s not surprising he needs Versed before they do anything after all he’s been through. I’m surprised YOU don’t need some, too.

  2. I’m so SO glad to hear! I did tear up reading about the nurses having to hold him down. I HATE not being able to be with my baby when they wake up. My heart breaks with you.

  3. Emily from NZ

    Glad to hear it went well!

  4. I am relieved to read this post. I am sure that Apollo has every reason to not want another procedure. It is so pleasing to read that his anaesthetist was so well prepared and was not afraid to help Apollo through this. How wonderful to read that his pain is minimal. Prayers.

  5. Sounds like things went better than you expected.That is always nice. When he woke up was he just upset you were not there or was it the drugs making him agitated? Just curious. So glad you were able to go home so soon! Nice when something goes better than expected:)

    Still praying for you all!

    • bakersdozenandapolloxiv

      Liz- it seemed like just the “normal” post-anesthesia grumpiness.

      • When our 4 yr daughter had an MRI and had anesthesia luckily she woke up just a bit loopy…not general anesthesia though…she just kept asking if she was going to have her test done soon…it had already been done:)

  6. So glad it went as well as it did. Praying now for some answers for you all.
    Hope your day is a quiet one! 🙂

  7. Great news that everything went pretty well! I never understood why Mom’s can’t be in recovery. Lori would wake up and as soon as I was there, she was fine. Plus, who knows your child better than you? After her 3rd procedure, she woke up acting completely differently than she ever had. After arguing with the nurse for several minutes about it not being HER normal, she finally checked the chart and discovered she hadn’t been administered her pain meds prior to wake up. Gee, don’t know why she was screaming! Mommy’s are invaluable.

    • bakersdozenandapolloxiv

      Well, there really isn’t that much room in the recovery area and sometimes it takes hours for a kid to wake up…

  8. I’m glad it went so well! Kia had to have a procedure when she was about Apollo’s age and they also gave her Versed. That girl cracked me up! Now that she’s 18 and dealing with a 3 year old migraine I’m wondering if they can’t just give us some more of that stuff! Of course I’m kidding…I think 😉
    Glad he made it through and it was fairly easy on you guys.

  9. […] Apollo’s history well, including his horrible experience with anesthesia last time when the anesthesiologist made a note that he was an “unhappy” child and needed versed and any other comfort measures available. The purpose of the visit was to make […]

  10. […] it seems, is a process. Apollo had his g-tube surgically placed May 4th, 2012. He had the original PEG tube replaced with a mic-key September 17th, 2012. And yesterday Apollo had an appointment so I could learn to swap out his […]

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